raredisease


Pictures about raredisease

 g topsy.oneRare Disease Day Facebook ... g topsy.oneRare disease tools, resources, ... g topsy.oneBPSU - Rare Disease Day g topsy.one... for World Rare Disease Day g topsy.oneRare diseases affect 30 ... g topsy.oneRare Disease Day Facebook ... g topsy.one... celebrating Rare Disease ... g topsy.onehands to address rare disease ... g topsy.oneOn Rare Disease Day - 2010, ... g topsy.onesupporters g topsy.oneNew Report Highlights a Decade ... g topsy.oneRare Disease Day g topsy.oneRare Disease Day USA g topsy.oneRare disease infant mortality ... g topsy.one1 in 10 People have a Rare ... g topsy.one... Million logo ... g topsy.oneSiren Interactive | Rare ... g topsy.oneNORD-INFOGRAPHIC-People-who- ... g topsy.oneflyer4ggp-reco-3-2 g topsy.onePin by Rare Disease Report on Rare Disease Report | Pinterest b topsy.oneFifths Disease Hands International rare disease b topsy.oneRare disease: The deadly form of meningitis has eaten away at the ... b topsy.oneRaise Your Hand for Rare Disease Day` with Jenny Agutter - YouTube b topsy.onePeople With Porphyria Help rare disease porphyria b topsy.onevelasquez a girl from austin texas suffers from a rare disease called ... b topsy.one... Progeria on Pinterest | Sam Berns, Hayley Okines and Rare Disease b topsy.oneThe most alluring resort in northern Xinjiang, Kanas Lake (PHOTOS ... b topsy.oneCancer-stricken boy, 2, dies just two days after serving as best man ... b topsy.oneWhy Does Rachel Maddow Talk Out of One Side of Her Mouth? – The ... b topsy.oneElephant Disease Болен от елефантиазис b topsy.oneCertara (@Certara) | Twitter b topsy.oneLife!#Quotes #Famous Quotes #Inspiration quotes #Motivation quotes ... b topsy.oneAlthough Sarah inherited millions of dollars and a daily pay out from ... b topsy.onemshealth - CAUSE OF PROGERIA b topsy.oneNew Data Reveals Spiolto Respimat Improves Management of COPD Patients ... b topsy.one b topsy.oneJust another sleepless night :) insta topsy.oneWhere do you guys take your #Pills2go? I bring mine with me to work 📽 I can fit all 9 of my afternoon medications in the pill container! Did you guys know it is also shatterproof? Make sure you check out @spoonie_essentials_box to see me testing that out 😏 insta topsy.oneLOVE is all you need." ❤️💙❤️Both of these tees are on SALE in honor of LOVE & COURAGE. Stock is limited so get them while you can. ❤💙❤ NeverGiveUp.org #loveandcourage insta topsy.oneThis is really important for those who don🤗 as 🍹(pleased as punch? No? Okay...) to see my own little coping thoughts on @healthstoriesproject today, which features a new blog post by @shellimartineau describing 14 things a few of us with chronic illnesses found and find helpful to know and remember following diagnosis/diagnoses. 
I wonSo I didnInspector Jack says, "go go gadget iPad!" Thank you Edinburg ChildrenThe appointment went really well! Dr. Afrin is very nice, compassionate and understanding. The appointment was almost 3 hours long since we spoke about my health from infancy to present day. Brad, my dad and I are extremely exhausted and I just had to use all my mast cell/antihistamine meds including an epi pen so this is a semi short summary and I will write more later. He said I was a classic severe MCAS case but he needs more lab evidence to suggest treatment.  Also, heThanks to @drink.wow for letting me try your yummy drinks and the opportunity to think about what my #wowescape would be. Travel is something that I used to love to do, even though I struggled because of my health. I would fly to South Africa for 6 days or India for 3 because of amazing opportunities. 
I would fly to the US and travel across the country, city hopping to visit my friends. I would jump on a train to Paris on a whim. Even then, it was a real challenge, but I managed to do it. Now travelling is much more complicated. Everything needs so much more planning. Travelling when youSign the Organ Donor Register. If youGetting used to my new roundy darky little friends, my long-distance glasses, and preparing myself to incorporate new tools very soon, thank to my visit to Centro Mayo de baja visión. IJust another sleepless night :) insta topsy.oneI guess IMigraines got me looking like a movie star 😎 insta topsy.oneLooking to interview more people for my blog. Chronic illness, invisible illness and kind of illness is welcome. Also looking for care givers! Contact me or simple PM me your email address. Thank you to all those beautiful and brave souls whom have shared their stories. #interview #chronicillness #raredisease #geneticdisease #invisibleillness #brave #sharing #caring #education #loving #compassion #yourstorymatters insta topsy.oneJust found 2 GIGANTIC bruises on the back of my leg along with the other random little bruises and a few petechiae. Not super psyched about possibly being sent to the ER. Getting back on steroids or any of the other possible treatments. #currentmood #itpawareness #itpwarrior #blooddisorder #lowplatelets #platelets #raredisease #autoimmune #itpaware #SeptemberisITPAwarenessMonth #purpleforplatelets insta topsy.oneSince my daughters were old enough to form their own opinions I have allowed them self expression with fashion, hair, music, dance and art. Both my girls are kind, honest, nurturing, funny, talented and intelligent. They are the reason I am still alive and havenBirthday Princess with her cowgirl doll

#chasingthecleavers #bosawareness #bohringopitz #birthdaygirl #princess #specialneeds #specialneedskids #raredisease insta topsy.oneSo I told my daughter she should start doing Tai Chi to help with lining he knees up with her feet. She goes, "Mom. ThatRaising awareness for Congenital Hyderinsulisism 💫
Rare disease day is February 28th 2017. There are more than 8000 known rare diseases affecting more than two million Aussies of which up to 400,000 are children. 
#careforrare #congenitalhyperinsulinism #mysugarbaby #rarediseaseawareness #rarediseaseday #rarediseasessuck #CHI #raredisease #hypoglycemia insta topsy.oneI know that it is kinda hard to see. Well if you are interested in seeing it go to my website and look up sickle school or sickle Anatomy... You will get the info or link to anything that you need to find about our body! Oh yes MY RESEARCH IS ON POINT! I find out what the PATIENTS need to know about our body and how it operates with these cells flowing through it 24/7. My site ainMerindukanmuuu, bocah ganteng..
Semoga kita bisa segera beekumpul lagi di rumah

#myboy#babygirl#rare#raredisorders#raredisease#atresiaileum#herniaparastomal insta topsy.oneThis applies to all ages – thank you ChildrenHi Everyone! After much feedback from several mamas wanting to have more private discussions about the subject of motherhood and chronic illness, I launched a closed group on Facebook for Mommy Isn#interstitialcystitis #interstitialcystitisawareness #chronicillness #chronicdisease #invisibledisease #pbs #rareillness #raredisease #pelvicfloordysfunction #chronicillnesswarrior #icfighter #icwarrior #education #health #painfulbladdersyndrome #bladderdisease #invisibleillness #helpfindacure #educate #illness insta topsy.one@Mr.Sickle When I first saw this picture I fell in love with it. #Art like this is hard to #write for bc it speaks for itself. That#‎BloodDonorAwarenessMonth is a good time to get informed about our MDS Centers of Excellence worldwide – and a great time to announce our brand new MDS Center of Excellence in China!

Find a comprehensive listing of centers, searchable by state or country and find the treatment center that

Best tweets:

SEDMedic 10/01/2017 07:38
Le medecin de demain. Toutes les infos et les traitements en quelques secondes meme pour #RareDisease #EhlersDanlos #Watson https:// twitter.com/tomg_/status/8 18396321212088320   …
SEDMedic 09/01/2017 08:07
Ce que vivent les enfants au quotidien avec #maladierare #EhlersDanlosSyndrome #EDS #raredisease https:// twitter.com/RareDiseases/s tatus/818487227349172228   …
OrphanetJournal 09/01/2017 04:35
Moebius sequence –a multidisciplinary clinical approach #RareDisease #OJRD ojrd.biomedcentral.com/articles/10.11 86/s13023-016-0559-z   …
Atteint par une #maladierare et un exemple pour tous #raredisease https:// twitter.com/nature/status/ 818012040518336512   …
SEDMedic 07/01/2017 08:53
Je dis bravo!! #EhlersDanlos #SanteConnectee #FrenchTech #maladieschroniques #RareDisease #maladiesrares #douleurchronique #Chiari #SAMA https:// twitter.com/COUHETEric/sta tus/817423916973064192   …
Rare Disease Day 17/01/2017 06:00
Sign the #RAREvolution petition to help increase support for #raredisease #research ow.ly/GPrj304aB9v   @BLACKSWANFound
Yoni Maisel - CVID 17/01/2017 04:09
#GeneTherapy: 'A Desperate Race to Save the Children' http://www. philly.com/philly/news/20 170117_The_promise_of_gene_therapy_for_Eli_and_Ella__but_not_Calliope_Joy.html?photo_3   … #SNRTG #BigData #RareDisease #tech #biotech #science #genomics
http://pic.twitter.com/5SZENKdcLk
#GeneTherapy: 'A Desperate Race to Save the Children'  http://www. philly.com/philly/news/20 170117_The_promise_of_gene_therapy_for_Eli_and_Ella__but_not_Calliope_Joy.html?photo_3   …  #SNRTG #BigData #RareDisease #tech #biotech #science #genomics<br>http://pic.twitter.com/5SZENKdcLk
MM&M Magazine 17/01/2017 02:59
#Trump administration raises questions for #RareDisease #pharma companies. #ACA #Insurance bit.ly/2jUOowu  
http://pic.twitter.com/56cN7hqOdl
#Trump administration raises questions for #RareDisease #pharma companies. #ACA #Insurance  http:// bit.ly/2jUOowu     <br>http://pic.twitter.com/56cN7hqOdl
NCI Ctr Cancer Rsrch 17/01/2017 02:00
.@ncats_nih_gov & @NIHClinicalCntr host #RareDisease Day @NIH on Feb. 27. Register now for this free event: bit.ly/2ioutp1   #RDDNIH
http://pic.twitter.com/r0DopQaXBX
.@ncats_nih_gov & @NIHClinicalCntr host #RareDisease Day @NIH on Feb. 27. Register now for this free event:  http:// bit.ly/2ioutp1      #RDDNIH<br>http://pic.twitter.com/r0DopQaXBX
Yoni Maisel - CVID 16/01/2017 09:22
"The Future of Medicine Is Personal" - Beautiful Presentation https://www. youtube.com/watch?v=LjqsGf AU42o   … #SNRTG #BigData #RareDisease #tech #genomics #science
http://pic.twitter.com/SD3bgTGrkI
"The Future of Medicine Is Personal" - Beautiful Presentation  https://www. youtube.com/watch?v=LjqsGf AU42o   …  #SNRTG #BigData #RareDisease #tech #genomics #science<br>http://pic.twitter.com/SD3bgTGrkI
IDF 14/01/2017 07:31
Feb. 28 is #RareDiseaseDay! Mark your calendars & help us spread #piawareness #raredisease @RareDiseases
Yoni Maisel - CVID 14/01/2017 04:28
#Genomics Study Decodes Mutation Behind 2 Birth Defects http://www. medicalnewstoday.com/articles/31521 1.php   … #SNRTG #BigData #RareDisease #science #tech #heart #DNA
http://pic.twitter.com/fGGnboLkAK
#Genomics Study Decodes Mutation Behind 2 Birth Defects  http://www. medicalnewstoday.com/articles/31521 1.php   …  #SNRTG #BigData #RareDisease #science #tech #heart #DNA<br>http://pic.twitter.com/fGGnboLkAK
@westmidsgmc 13/01/2017 03:25
Register now for @BPSUtweet paediatric #RareDisease conference @Bham_Childrens bit.ly/2ikLS6v   @BCH_Rare @RCPCHtweets
http://pic.twitter.com/ugfAuzPGMP
Register now for @BPSUtweet paediatric #RareDisease conference @Bham_Childrens  http:// bit.ly/2ikLS6v      @BCH_Rare @RCPCHtweets<br>http://pic.twitter.com/ugfAuzPGMP
SEDMedic 13/01/2017 01:28
#EhlersDanlos #RareDisease En avant pour des reponses et des solutions #esante https:// twitter.com/AllianceMR/sta tus/819804887374438400   …
American MedChem 13/01/2017 05:52
The video describes our #collaborative #philanthropic model for #medicine #childhoodcancer #Meds4Kids #RareDisease https:// youtu.be/WLzhs1zhsB0  
BSF charity 12/01/2017 11:35
Do you have a rare #skincondition & want to raise awareness of it? Email [email protected] #RareDisease #skinproblems
http://pic.twitter.com/T7VqdOA1SO
Do you have a rare #skincondition & want to raise awareness of it? Email lisa@britishskinfoundation.org.uk #RareDisease #skinproblems<br>http://pic.twitter.com/T7VqdOA1SO
Yoni Maisel - CVID 12/01/2017 09:39
#CRISPR Promise for a Rare #PrimaryImmunodeficiency Cure https://www. eurekalert.org/pub_releases/2 017-01/nioa-nsr011017.php   … #SNRTG #BigData #RareDisease #genomics #tech #biotech
http://pic.twitter.com/5szN5TnvX1
#CRISPR Promise for a Rare #PrimaryImmunodeficiency Cure   https://www. eurekalert.org/pub_releases/2 017-01/nioa-nsr011017.php   …  #SNRTG #BigData #RareDisease #genomics #tech #biotech<br>http://pic.twitter.com/5szN5TnvX1
Rachel Martens 11/01/2017 09:52
I had the special opportunity to discuss #RareDisease from an #alberta perspective. #yyc #health #calgary https:// twitter.com/abprimetime/st atus/819291764838244352   …
Horizon Pharma plc 11/01/2017 09:20
It's been a great few days at #RAREintheSQUARE supporting #raredisease innovation with @GlobalGenes & many others bit.ly/2iCv2ij  
http://pic.twitter.com/2LfkX3QQcx
It's been a great few days at #RAREintheSQUARE supporting #raredisease innovation with @GlobalGenes & many others  http:// bit.ly/2iCv2ij     <br>http://pic.twitter.com/2LfkX3QQcx
Rare Disease Day 11/01/2017 06:00
BREAKING NEWS! The official #RareDiseaseDay 2017 poster is out now! Download here: http://www. rarediseaseday.org/downloads   #RareDisease
http://pic.twitter.com/lH083lfIV7
BREAKING NEWS! The official #RareDiseaseDay 2017 poster is out now!  Download here:  http://www. rarediseaseday.org/downloads      #RareDisease <br>http://pic.twitter.com/lH083lfIV7
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