raredisease


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Best tweets:

Ataxia and Me 17/02/2017 09:00
A proud #FridayFeeling Via @himsseurope #Ehealthweek #Malta #Press #Ataxia #raredisease #patient #health cc @dmauro30 @johnnyjots
http://pic.twitter.com/NRCHoBFe2M
A proud #FridayFeeling   Via @himsseurope #Ehealthweek #Malta #Press #Ataxia #raredisease #patient #health   cc @dmauro30 @johnnyjots<br>http://pic.twitter.com/NRCHoBFe2M
Alize RP 14/02/2017 07:00
.@Alize_RP salue la participation de @cellectis au #Orphan Drug Day. #Raredisease #biotech
topsy
ABPWilson 16/02/2017 04:53
Faire entendre notre voix sur les medicaments via @66Mimpatients http://www. 66millionsdimpatients.org/augmentation-d u-prix-de-la-trientine-traitement-utilise-pour-la-maladie-de-wilson/#   … #MaladieWilson #JourneeMaladiesRares #RareDisease
Marianne Paquette 14/02/2017 07:50
Pourrait interesser @maladorphelines #maladiesrares #rarediseaseday #RareDisease https:// twitter.com/m_paq/status/8 31582376086163458   …
RQMOrphelines 12/02/2017 03:41
Salon des maladies orphelines 21 fevrier complexe Desjardins, Montreal #maladiesrares #rarediseaseday #RareDisease @complexeDesj
http://pic.twitter.com/aw0qwfzhom
Salon des maladies orphelines 21 février complexe Desjardins, Montréal #maladiesrares #rarediseaseday #RareDisease @complexeDesj<br>http://pic.twitter.com/aw0qwfzhom
Findacure 20/02/2017 01:25
Wednesday is your last chance to get tickets for our #RareDiseaseDay conference! ow.ly/AwXP309aAwU   #DrugRepurposing #RareDisease
http://pic.twitter.com/C3D9Jp7hHq
Wednesday is your last chance to get tickets for our #RareDiseaseDay conference!  http:// ow.ly/AwXP309aAwU      #DrugRepurposing #RareDisease <br>http://pic.twitter.com/C3D9Jp7hHq
Federación ASEM 20/02/2017 01:03
Multi-Stakeholder Symposium on Improving Patient Access to #RareDisease Therapies. Bruselas, 22 Februry buff.ly/2lCxTKj   @eurordis
http://pic.twitter.com/DGRv2mPCbZ
Multi-Stakeholder Symposium on Improving Patient Access to #RareDisease Therapies. Bruselas, 22 Februry  http:// buff.ly/2lCxTKj       @eurordis<br>http://pic.twitter.com/DGRv2mPCbZ
Reeha Paul 20/02/2017 12:44
@PMOIndia Humanitarian Appeal for medical assistance for #RareDisease #NiemannPickC patient in Kolkata. Medicine unavailable in India.
Yoni Maisel - CVID 20/02/2017 11:56
Gene Therapy Takes On Hemophilia http://www. ctvnews.ca/health/excitin g-new-therapy-shows-promising-results-for-hemophilia-patients-1.3291222   … #SNRTG #BigData #RareDisease #GeneTherapy #genomics #science #tech #Hemophilia #DNA
http://pic.twitter.com/90wCGcgJZi
Gene Therapy Takes On Hemophilia  http://www. ctvnews.ca/health/excitin g-new-therapy-shows-promising-results-for-hemophilia-patients-1.3291222   …  #SNRTG #BigData #RareDisease #GeneTherapy #genomics #science #tech #Hemophilia #DNA<br>http://pic.twitter.com/90wCGcgJZi
Genetic Alliance UK 20/02/2017 11:55
Could you help us update GPs' knowledge of genetics? @LynchSyndromeUK #RareDisease #Genetics
http://pic.twitter.com/mMPmLhe0jX
Could you help us update GPs' knowledge of genetics? @LynchSyndromeUK #RareDisease #Genetics<br>http://pic.twitter.com/mMPmLhe0jX
aHUS Alliance Action 20/02/2017 11:50
#aHUS is a very #RareDisease. Learn more: http://www. ahusallianceaction.org/ahus-rare-dise ase/   … Atypical HUS Resources: http://www. ahusallianceaction.org/ahus-alliance- press-kit/   … aHUS Alliance #SHUa
http://pic.twitter.com/0LTrCjYKbz
#aHUS is a very #RareDisease.  Learn more:   http://www. ahusallianceaction.org/ahus-rare-dise ase/   …  Atypical HUS Resources:   http://www. ahusallianceaction.org/ahus-alliance- press-kit/   …  aHUS Alliance #SHUa<br>http://pic.twitter.com/0LTrCjYKbz
Katie Bushby 20/02/2017 11:42
Crucial discussions for #raredisease patients and new #ERNs (UK is coordinating 6- offering great benefits for patient care) @GeneticAll_UK https:// twitter.com/sarahwollaston /status/833626701674446848   …
Marfan Trust 20/02/2017 10:14
Who is affected by #marfan syndrome? #mondaymotivation #FactoftheDay #raredisease
http://pic.twitter.com/UEuHgmCe2b
Who is affected by #marfan syndrome? #mondaymotivation #FactoftheDay #raredisease <br>http://pic.twitter.com/UEuHgmCe2b
christina mutena 20/02/2017 09:31
Bumper stickers for #RareDiseaseDay Kenya are almost out .. who wants some? #RareDiseaseKE #RareResearch #RareDisease
http://pic.twitter.com/XBkXqK9tUm
Bumper stickers for #RareDiseaseDay Kenya are almost out .. who wants some? #RareDiseaseKE #RareResearch #RareDisease <br>http://pic.twitter.com/XBkXqK9tUm
FoundMM 19/02/2017 03:06
Matt Vautour remembers Durfers’ perfect lacrosse moment as more. #FMM #raredisease #HopeFlies #Give28on28 trib.al/PjM0Kwz  
Yoni Maisel - CVID 19/02/2017 12:33
"Rare" Genomics Hitting Its Stride 'Down Under' http://www. abc.net.au/news/2017-02-1 8/researchers-of-rare-genetic-disorders-in-children-mark-milestone/8282822   … #SNRTG #BigData #genomics #RareDisease #genetics #science #tech #DNA
http://pic.twitter.com/uImrZ21qnz
"Rare" Genomics Hitting Its Stride 'Down Under'  http://www. abc.net.au/news/2017-02-1 8/researchers-of-rare-genetic-disorders-in-children-mark-milestone/8282822   …  #SNRTG #BigData #genomics #RareDisease #genetics #science #tech #DNA<br>http://pic.twitter.com/uImrZ21qnz
Yoni Maisel - CVID 18/02/2017 05:30
#RareDisease Patient & #Genomics Scientist! Insight from @broadinstitute's @theFourier2k | https:// soundcloud.com/broadinstitute /broadignite-podcast-s1-e2-interview-with-daniel-macarthur-and-monkol-lek   … #SNRTG #BigData #tech
http://pic.twitter.com/46sA4HooMV
#RareDisease Patient & #Genomics Scientist! Insight from @broadinstitute's @theFourier2k |  https:// soundcloud.com/broadinstitute /broadignite-podcast-s1-e2-interview-with-daniel-macarthur-and-monkol-lek   …  #SNRTG #BigData #tech<br>http://pic.twitter.com/46sA4HooMV
aHUS Alliance Action 18/02/2017 02:39
#RareDiseaseDay is 28 Feb- Help raise awareness of #raredisease issues, #diagnostic & treatment challenges, and need for increased research.
http://pic.twitter.com/lfJX6tSXfQ
#RareDiseaseDay is 28 Feb- Help raise awareness of #raredisease issues, #diagnostic & treatment challenges, and need for increased research.<br>http://pic.twitter.com/lfJX6tSXfQ
Christine Collins 17/02/2017 07:18
Delighted that all our NI SMA kids are getting Nursinesen! Tx to all who made it happen; do we need a protocol for next time? #RareDisease
nicola whitehill 16/02/2017 11:17
@JScleroderma #research #hope #global communication crucial https:// sclerodermanews.com/2016/03/14/551 7/   … #RareDisease #SclerodermaFreeWorld #RaynaudsFreeWorld
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