#EDS

Pictures about #EDS

Happy Thanksgiving everyone ! Last year, I was so sick that I spent all day on the couch taking strong pain killers and eating Jello (as seen in that last picture), so to be able to fully participate in the festivities was truly a blessing. Since my body behaved today, I took a walk, I visited a botanical garden, and I made 130 biscuits - check out the size of that mixing bowl. And tonight, I’ll be able to have turkey ! Even though that’s the only Thanksgiving food I’ll be able to eat because of my other digestive system issues, I couldn’t be more excited. And even though I sprang a leak earlier today, I got to take that as an opportunity to teach my cousin all about Olly ! Thanksgiving has always been my favorite holiday because I am surrounded by the people I love, and this year’s celebration is even more special because of the year that I (and therefore all of my loved ones) have gone through. So now it’s time to celebrate and give thanks for many blessings in my life, especially Olly, my family, and this man right here. #mollyollyostomy #ileostomy #ostomy #chronicillness #invisibleillness #nocolonstillrollin #spoonie #ostomates #stoma #ittakesguts #girlswithguts #chronicallymotivated #posturalorthostatictachycardiasyndrome #POTS #dysautonomia #EhlersDanlosSyndrome #EDS insta topsy.oneYou’re going to be okay #thisischronicillness insta topsy.oneEnjoying my own Thanksgiving dinner 😂 amino acids yum yum! Happy Thanksgiving everyone! insta topsy.oneThree years ago. The third of seven knee surgeries. Time flies. #eds #edslife #ehlersdanlossyndrome #spoonielife #spoonie insta topsy.oneHappy Thanksgiving everybody! I am very excited, I am going to go to GrandmaHad my post-up appointment this morning with both my surgeon and stoma nurse, which went really well! Because my nurse wanted to check on my stoma (which she put silver nitrate on because of granulomas I have developed), we had to change my bag. Even though I had it changed just yesterday, it feels nice to have a fresh one on, especially since — despite using lubricating deodorant — my output tends to “pancake” (ostomate term referring to output buildup at the top of the bag instead of the bottom). My nurse told me that this shouldn’t really happen with an ileostomy, and that it’s from not drinking enough... Ugh, I really need to get better at that! 🤦🏽‍♀️
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Also, I learned that the order in which I apply all of my ostomy products during a bag change has been totally wrong. 😳 The reason why my wafer never stuck when using stoma powder (to help with my irritated skin) is that I applied it AFTER using barrier wipes, when I’m supposed to put it on BEFORE! Oops! 😅 Well, it’s all still a learning curve and it (as of tomorrow) has only been three weeks since my surgery, so it’s inevitable to make mistakes along the way.
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My surgeon also assured me that the “normal” bowel movements I am still having (out of my other end...) should eventually go away, and that it’s absolutely not from my stoma output traveling into my attached mucous fistula. I really hope that this will subside, because I was afraid of this happening with my colon still intact... 😕
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Overall, it’s been a great (albeit exhausting) day so far! 👍🏼
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#ostomate #ileostomy #ostomy #stoma #girlswithguts #ostomyawareness #chronicillness #invisibleillness #spoonie #chronicallymotivated #eds #ehlersdanlossyndrome #zebrastrong #dysautonomia #orthostatichypotension #pots #mastcellactivationsyndrome #endometriosis #endowarrior #klippelfeilsyndrome insta topsy.oneMano a mano con; @kies_wildcans!!! #madness #descendants !! #wc #eds #gws !! #thrash #graffitiporn #graffiti  #fantasyart insta topsy.oneSevgili @doulanevin emeğine sağlık, ne harika bir paylaşım ❤️sonucu heyecanla bekliyorum 🙏🏼 sevgili anneler evlat edinen annelerin emzirme dönemi ile ilgili daha önce de paylaşım yapmıştım yabancı bir ebenin hesabından aşağılarda var. Bu sürece #indüksiyon diyoruz. Daha evvelden emziren ama bazı durumlardan ötürü sütü azalan, kesilen annelerde de süt getirme çalışmaları yapılabiliyor #relaktasyon denilen bu uygulama hakkında da yazacağım en uygun zamanımda. Bu konuda çok soran annemiz var toplu cevap olur. Sevgiler 🌸 #ciplaktentemasi #emzirmedesteksistemi #eds insta topsy.oneGucci Gang ❤️👑 #goodjob #gooddancers #eds choreo : @kliskabb_ 👑 dancers: @_g.a.b.i._  and @kliskabb_ 🔥🔥💪🏿 insta topsy.one🔥СВОБОДНЫЕ ОКОШКИ В ВЫХОДНОЙ🔥
А Вы уже успели побывать у нашей феи Натальи?😍
Если да, то Вы знаете, что именно она сделает Вам такие реснички, как Вы хотите🤗
Двойной, тройной, да хоть Голливудский объёмы💪🏻
Чтобы убедить Вас, что мы говорим правда, листайте вправо и читайте отзывы о мастере Натальи➡️➡️
Напоминаем, что все отзывы о нас Вы можете посмотреть на этой страничке @eyedesignstudio (Да-да, их так много, что мы решили сделать для них отдельную страничку💯💪🏻)
На этой неделе к мастеру Наталье осталось всего ДВА свободных окошка😱😱😱
🌟26.11:
🕙10:00
🕔17:00
Кто успеет из занять, будет с шикарными ресничками, даём слово EDS❤️❤️
🏘Студия: Кузнецкий мост 19стр2 (5 минут от метро)
🕑Работаем каждый день с 10:00 до 20:00
☎8(999)839-01-77 insta topsy.oneI hope everyone had and amazing day and you took a moment to be thankful for your blessings 🙏🏼 I’m so very thankful for my beautiful baby boy 👦🏼👑 who brings light and hope to my life when sometimes I just see darkness. I’m thankful for having strength to let go of the past and live my life with no expectations. Accept people as they are and walk away from those who let you down 🌻 #highlightheaven @vanessasvanity sweet heat #highlighter @bhcosmetics #bhcosmetics #bhmascara #reallashes @softlensqueen #sweetyspartax @ctilburymakeup #ctilburymakeup #flawlessskin #glowingskin #lips #pillowtalk #brows #eyes #makeuplover #makeupjunkie #instalove #instaglam #instabeauty #broken #eds #cubangirl #socal #thanksgiving2017 🍁💫🍂 insta topsy.oneGodmorgon! Tröttmössa delux men ett bra axel- och armpass gick att riva av ändå nu innan det är dags för sjukgymnasten 👌🏻🙏🏻 insta topsy.oneInspirational tea ☕️
I thrive off of making others happy, and smile! Smiling is one of my favorite things to do, and it is the easiest thing to do to help brighten someone’s day! I know being chronically ill brings my emotions down, but I always ask myself, have you smiled today? Smiling and laughter is the best medicine, in my opinion! 🙃😊 #sickandsmiling #chronicpain #bravesoul #pots #eds #ehlersdanlos #haveyousmiled #happytea #yetti #hydration #chronicillnessvlogger insta topsy.one#EDS
#upallnight
#dogsareagirlsbestfriend
#mumshoulhaveknownbetter
#mustpacethewarrior
Love 💕 how cute Mabel is with Elsie. insta topsy.oneLove yourself x insta topsy.oneLegs coming out of my forehead is just silly.  #purple #purplehair #tealhair #selfie #chubbychick #bodypositive #leo #infj #borderlinepersonalitydisorder #bpd #fibromyalgia #eds #chronicillness #invisabledisability #greeneyes #makeupaddict #mybaf #chickswithink #tattoo #modified #sensoryprocessingdisorder #stars #tattooed #turkeylegs #filter #snapchat #silly insta topsy.oneBusy beinThankful for so many people, places, and things- Hope being one of them... Hope that tomorrow’s pain won’t be as bad as today’s; hope that those who are suffering will be able to spread compassion and understanding to the rest of the world; hope that, if nothing else, our struggles will stand as a reminder that we have triumphed over ever single battle we’ve faced; hope that we will find a cure(s). (P.S. Also incredibly thankful for this platform and all of the wonderful ppl in my life that l couldn’t live w/o 🙌🏼) #dontstopgetitgetit #happythanksgiving #nevergiveup #chronic #chronicillness #pain #chronicallyill #eds #classicaleds #heds #hypermobility #migraine #herniateddisc #pcos #lyme #lupus #crps #ddd #me #ibd #ibs #depression #anxiety #spoonies #dontstopgetitgetit #thrivingandsurviving #strongerthanyouraverage #sickerthanyouraverage #lifehacksforchronicillness insta topsy.oneHeart and strength of a lioness.
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#fightingspirit #fitness #eds #forlife insta topsy.oneHappy thanksgiving 🦃 I hope everyone had a wonderful holiday and got to spend it with the people who love them 😘

Major holidays seem to be focused around food (a crazy abundance of food) but as a person who struggles to eat, thanksgiving is one of my favorites as we can focus on family and being thankful for what we have and where we are today. 
I try to improve my relationship with food but it is so hard because of how much I know I need to eat and how much pain and nausea each swallow causes. 
But the success of today was that,  for the first time I actually joined the family at the table (and we all sat at one long table). Usually we have multiple tables so I migrate from table to table and eventually end up on the couch to wait for everyone to eat.

I also have a goal of trying something “new” everyday, but today I stuck to my “safe”/familiar foods (that’s why i am sitting like an acco-taco with an empty plate). But that still landed me with hives and in need of benedryl because I ate crackers (that I normally tolerate fine) off of a plate in the kitchen. We think there was some cross contamination with dairy or something. All is good now though, although I am a bit twitchy from the benedryl. insta topsy.oneHappy turkey day everyone🦃 here’s a tb with some of the girls i’m thankful for💞
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choreo: @brkofdon 💣
dancers: @kinzeegrenfell03 @zayliebug_ 
song: 🎶”Deep Under” @jayd_ink 
studio: @elementdancestudio
#smooth #vibing #vibes #waves #groove #hard #movement #detail #musicality #tb #tbt #hardwork #training #dancer #dance #dancing #DeepUnder #JaydInk #hiphop #elementdancestudio #EDS #RISE insta topsy.oneIf you✔Minha Palestra no  Evento EDS+Bradesco em comemoração ao Dia Global do Empreendedorismo Femino. #EmpreendedorismoDeSalto #EDS #MulheresEmpreendedoras insta topsy.oneHer entire life she has been judged by others .... ItOn the left: happily cooking Thanksgiving dinner and decorating the house. On the right: a few hours later, crashing in severe pain. This is life, and sometimes the pain I endure is worth the fleeting hours of happiness. #chronicillnesswarrior #ehlersdanlossyndrome #EDS #potslife #chronicpain insta topsy.oneHappy Thanksgiving Everyone! We had a great day but like many spoonies I was reflecting on how hard it is to celebrate gratitude when you don’t feel thankful. “This has been on my mind a lot this past week. It can be hard to be thankful when there is so much broken in our world, in our lives, and for us spoonies, in our bodies too. Right now I have so much to be thankful for, yet all I can seem to gravitate towards is the fact we don🍁 Thanksgiving 2017 🍁
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#happythanksgiving #thanksgiving2017 #fall #autumn #ootd #motd #beauty #style #makeup #fashion #jaclynhillxmorphe #jaclynhillpalette #woolhat #sweaterweather #boots #backtonature #treehugger #nc #glasses #selfie #smize #amiamodelyet 
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#halfzebrahalfunicorn #eds #ehlersdanlossyndrome #pots #chronicillness #invisibleillness #spoonie #smilethroughthepain
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Best tweets:

Flick Caldwell 23/11/2017 10:56
What doesn’t kill you makes you stronger! Spending some R&R time at home, aiming to get myself fitter & stronger for daily life #EDS #EhlersDanlos
City EDS defender Tyreke Wilson believes that Tottenham are similar to City in their playing style, which is why he expects Saturday’s clash to be an exciting game. The Blues welcome Spurs to the Academy Stadium in the Premier League 2 on Saturday 25 ...
Patrick 23/11/2017 10:40
#EDS Duffy

Brea, California, Nov 22, 2017—Moxa is pleased to announce that its EDS-518E and EDS-G205-1GTXSFP DIN-rail Ethernet switches have received marine certifications including DNV.GL, LR, ABS, and NKK, which make them suitable for deployment around the world.
Arthur 23/11/2017 10:05
Raymond Domenech svp #eds
I’ve reached my fill after just two pieces, that Michelle Goldberg piece that Ed wrote about yesterday and now this new one from Matt Yglesias at Vox. I don’t deny that part of the impulse behind them is virtuous. If left and right together can ...
Hannah Ensor 23/11/2017 06:03
Braces for #hypermobility can reduce injury. Over-use can help pain short term, but long term = muscle wastage, more instability, more pain. So use supports wisely - make sure you don't lose muscle but do minimise injury! #EDS #HSD #Marfan leaflet from https:// buff.ly/2mU6jdm  
http://pic.twitter.com/8aSfn9JJYG
Braces for #hypermobility can reduce injury. Over-use can help pain short term, but long term = muscle wastage, more instability, more pain. So use supports wisely - make sure you don't lose muscle but do minimise injury! #EDS #HSD #Marfan  leaflet from  https:// buff.ly/2mU6jdm     <br>http://pic.twitter.com/8aSfn9JJYG
The New York Times and Newsweek on Monday ran opinion pieces arguing that recently deceased murderer Charles Manson was similar to both the far right and President Donald Trump. In the Times, reporter Baynard Woods argued that Manson was not actually a ...
Oh TWIST! 23/11/2017 03:42
Be sure to download all 18 papers on new #EhlersDanlos nosology & diagnostic criteria here while they're FREE: https:// buff.ly/2iDzWeo   #EDS
According to the market research report “By Test (NDT, Weld Testing, Fractography, EDS, Others); By Technique (Sneak Circuit Analysis, FTA, FMEA, Others); By Product (Dual Beam Systems, ION Beam, Others); By Application (Oil & Gas, Aerospace, Automotive ...
Catherine Manning 22/11/2017 12:32
#Budget2017 #socialcare is important for people like me and my son with #arthritis #ChronicPain #EDS so we can live like you. @candsalliance @ArthritisRUK #dignity @KeeleyMP
http://pic.twitter.com/7Yd5D95UiK
#Budget2017 #socialcare is important for people like me and my son  with #arthritis #ChronicPain #EDS so we can live like you. @candsalliance @ArthritisRUK #dignity @KeeleyMP<br>http://pic.twitter.com/7Yd5D95UiK
Spoonie Zebra 22/11/2017 05:31
Unbroken Smile 21/11/2017 08:01
Pain Warrior! #spoonie #chronicpain #fibro #crps #eds #lupus #ms Here: https:// buff.ly/2zCVfX2  
http://pic.twitter.com/rH0fJocRj6
Pain Warrior! #spoonie #chronicpain #fibro #crps #eds #lupus #ms  Here:  https:// buff.ly/2zCVfX2     <br>http://pic.twitter.com/rH0fJocRj6
seven 21/11/2017 10:01
Struggling to find strength today. Need to get through physical and emotional pain. It’s the “I don’t give a shit” or “I need to keep fighting” mood shifts that are tormenting me. #BPD #EDS
Dawn 21/11/2017 08:10
Testing the @healthybackbag. So far it reduced pain with my #EDS and #pain
Ann Christine 21/11/2017 03:11
When you flush the toilet and cause a finger dislocation. #EDS #ehlersdanlossyndrome #EDSproblems
http://pic.twitter.com/tau0ep7PEM
When you flush the toilet and cause a finger dislocation. #EDS #ehlersdanlossyndrome #EDSproblems<br>http://pic.twitter.com/tau0ep7PEM
Red-Headed Stepchild 20/11/2017 09:23
#IBS #PTSD #Agoraphobia #EDS #Depression #Anxiety #Fibromyalgia #KRATOM helps me with all these things! It provides me a heightened quality of life without any high or ill-effects! #IAmKratom #PlantsNotPills #KratomSavesLives #keepkratomlegal
AMANDA EDS 19/11/2017 11:52
#EDS UK #Wombourne #SupportGroup is appealing for #raffleprizes for #ChristmasParty 10th Dec 17. @ehlersdanlosuk https:// m.facebook.com/story.php?stor y_fbid=10214514761052832&id=1534531520   …
http://pic.twitter.com/4AjNzzvYiT
#EDS UK #Wombourne #SupportGroup is appealing for #raffleprizes for #ChristmasParty 10th Dec 17. @ehlersdanlosuk   https:// m.facebook.com/story.php?stor y_fbid=10214514761052832&id=1534531520   … <br>http://pic.twitter.com/4AjNzzvYiT
Chronic Hope Jewelry 16/11/2017 08:59
I will be donating some of my proceeds to a charity related to either #EDS, #POTS, #Fibromyalgia or #NAMI (#mentalillness). Can anyone help me choose/suggest a #charity? #chronichopejewelry #chronicillness #chronicpain #spoonie #fibro #etsyjewelry #etsy #ehlersdanlos #fibro
Smart Mobility Inc. 14/11/2017 03:20
Your wrists will thank you! #smartCRUTCH #eds #crps #fibromyalgia #pots #cfs #tbi #gullianbarre #carpeltunnel #arthritis #helpfuladaptiveaid
http://pic.twitter.com/ehpinsmMO0
Your wrists will thank you! #smartCRUTCH #eds #crps #fibromyalgia #pots #cfs #tbi #gullianbarre #carpeltunnel #arthritis #helpfuladaptiveaid<br>http://pic.twitter.com/ehpinsmMO0
MHIIR 13/11/2017 06:17
Eating healthy can help chronic illnesses but it isn't a cure! #chronicillness #invisibleillness #Fibromyalgia #mecfs #ChronicFatigueSyndrome #Lupus #crohns #MultipleSclerosis #LymeDisease #mentalillness #ChronicPain #diabetes #epilepsy #arthritis #EDS #pots #CRPS @MHIIR_14
http://pic.twitter.com/ABTBTQ4MYh
Eating healthy can help chronic illnesses but it isn't a cure! #chronicillness #invisibleillness #Fibromyalgia #mecfs #ChronicFatigueSyndrome #Lupus #crohns #MultipleSclerosis #LymeDisease #mentalillness #ChronicPain #diabetes #epilepsy #arthritis #EDS #pots #CRPS @MHIIR_14<br>http://pic.twitter.com/ABTBTQ4MYh
It’s weird..twitter is the only social m. I care for lately. All the others just feel fake to me. Like they don’t know my story. #EDS #lupus
Invisiblenotbroken 13/11/2017 02:34
Did you miss our most popular podcast this week? Listen for #EDS #spoonielife #travel with #invisibledisability https:// buff.ly/2AbNLry  
http://pic.twitter.com/NXdYe5vxMK
Did you miss our most popular podcast this week? Listen for #EDS #spoonielife #travel with #invisibledisability  https:// buff.ly/2AbNLry     <br>http://pic.twitter.com/NXdYe5vxMK
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