EhlersDanlosSyndrome

Pictures about EhlersDanlosSyndrome

The next time someone tells you, "service dogs never get to have any fun," direct them to this video. 🎬 All three of us are service pups in training, all three of us are having a blast! 🎉 While IItPOSSIBLY GRAPHIC TO SOME PEOPLE /// Well my feeding tube decided to start bleeding on me in the shower and wouldnHad to post about @helper_dog_harlow ! Harlow is a service dog.  Always want to give thx to the pooches. (Not Lyme post but pooch post who had this below to say)
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° 🐶 " WeBack pain is such a buzz kill! My low back has been giving me all sorts of issues, PT has been somewhat helpful but I need other management tools. Trying out @kinesiotape to release the muscles! In other news I got my first DEXA scan today, IThis is Josephine exactly two years ago today - long before picc lines, tube feeds and multiple hospital stays - after receiving the award for Most Original Business Idea at the AZ Children#EDS #ehlersdanlossyndrome #brokenwrist #brokenallover. I hate having EDS. insta topsy.oneWho is a good boy????? #posturalorthostatictachycardiasyndrome #ehlersdanlossyndrome #chronicillness #servicedog #servicedogintraining insta topsy.one🚨DISCRIMINATION RANT🚨 Sheila is my lifeline, my saving grace. She makes it possible for me to be independent and free in a world that often resembles a prison. Today, an #ableist transit operator snatched that independence from me. IWooo. Party. #parking #dartmouth #dartmouthhitchcock #painmanagement #painmanagementclinic #ankylosingspondylitis #ehlersdanlossyndrome #spinalfusion #spinalpain #POTS #chairparking  #lobby insta topsy.one#painmanagement #painmanagementclinic at #dartmouthhitchcock no good news-IMmh, I started my day with some rosehip soup with ice cream and I must say that that was a pretty good start of the day. 
Now IPerfect treat after been poked and prodded by the dr.... referal back to physio! #hypermobilitysyndrome #spoonie #ehlersdanlossyndrome #hypermobility #invisibleillness #ehlersdanlos #spoonielife #zebra #hms #butyoudontlooksick #zebrastrong #edrecovery #jointhypermobilitysyndrome #hypermobile insta topsy.oneYou just do it. You force yourself to get up. You force yourself to put one foot before the other, and God damn it, you refuse to let it get to you. You fight. You cry. You curse. Then you go about the business of living. That’s how I’ve done it. There’s no other way". -Elizabeth Taylor ❤️💛💚💙💜
#lifewithchronicillness #cestlavie #ehlersdanlossyndrome #thoracicoutletsyndrome #endthestigma #EDS #invisibleillness #butyoudontlooksick #nouxnationalpark #nuuksionkansallispuisto #nuuksio #lifewitheds #cloudporn #luonto #nature #thisisfinland insta topsy.oneJag har inte sovit på hela natten, painsomnia 😭 men nu jävlar har jag fått en läkare! 😃😃😃 jag har även ringt ortopeden och bad sköterskan att kolla vad dom kan göra för mig, jag har ringt kardiologen för att kolla vad fan som hände med mitt två veckors EKG som jag skulle börjat med den 17e. Jag har även sorterat tvätt och startat en maskin. Jag verkar vara som mest produktiv när jag inte fått sova. Nu ska jag gå med Rufus och sen hoppas jag på att jag kommer kunna somna. #ehlersdanlossyndrome #painsomnia insta topsy.oneFish & chips for dinner tonight, pan fried snapper on cooked pineapple with salad and oven roasted fries. Absolutely delicious!
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#eds #ehlersdanlossyndrome #connectivetissuedisorder #cfs #chronicfatiguesyndrome #bfs #beniegnfasiculationsyndrome #anxiety #celiac #coeliac #celiacdisease #chronicpain #chronicillness #spoonie #zebra #zebrawarrior #sickbutinvisible #chronie #anxietydisorder #invisibleillness #PoTS #mcad #posturalorthostatictachycardiasyndrome #mastcellactivationdisorder #dysautonomia #glutenfree #dairyfree #fishnchips #salad #snapper insta topsy.onethese past two days have been full of birthday shenanigans with my boyfriend and family. yesterday was my actual birthday, I slept a lot and nearly threw up a few times but my mom made me a wonderful birthday dinner. today my brother took me to cheddars for a birthday lunch where we spent way too much of his money on food. I went to best buy and picked out the tablet/laptop i am getting for school next year. then Chandler took me to see beauty and the beast which was AMAZING!! then we went back to his house to help his mom get settled home from the hospital as she had surgery yesterday -Liv.
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#ehlersdanlossyndrome #birthday insta topsy.oneHanging out with this wee monkey, trying to keep her from screaming the house down while we wait for dinner to cook.
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 #eds #ehlersdanlossyndrome #connectivetissuedisorder #cfs #chronicfatiguesyndrome #bfs #beniegnfasiculationsyndrome #anxiety #celiac #coeliac #celiacdisease #chronicpain #chronicillness #spoonie #zebra #zebrawarrior #sickbutinvisible #chronie #anxietydisorder #invisibleillness #PoTS #mcad #posturalorthostatictachycardiasyndrome #mastcellactivationdisorder #dysautonomia insta topsy.oneSometimes dysautonomia can be isolating and lonely even when people are around. "Drink more, take more salt, try to do some exercise....youYep! This will be my #sdit and I get to pick him up April 8th! 
#servicedog #blacklab #spoonie #spoonielife #chroniclife #anxietylife #osteoarthritis #anxiety #depression #eds #ehlersdanlossyndrome #fibromyalgia #fibro #chronicillness #chronicpain #chronicwarrior #spoonies #spooniestrong #servicedogintraining #servicedogteam #servicedogsofinstagram #labrador #labradorretriever #puppylove #puppy #puppydog #toocute #adorable insta topsy.oneDidnYes, I may have hand braces now itBase @trilogyproducts 
Foundation @esteelauder 
Concealer @esteelauder 
Contour @anastasiabeverlyhills / @smashboxcosmetics 
Highlight  @w7cosmetics / @makeup_direct 
Eyebrows @anastasiabeverlyhills / @maccosmeticsaustralia 
Eyeshadow @urbandecaycosmetics 
Lashes @ardelllashesaus 
Mascara @maccosmeticsaustralia 
Eyeliner @maybelline 
Lips @maccosmeticsaustralia 
Choker @lovisajewellery 
Hair @loxysnz 
Dress @missguided 
#makeup #motd #mua #makeupmafia #makeupartist #nzbeauty #nzblogger #nzmua #auckland #newzealand #lovisajewellery #choker #hairextensions #loxysnz #anastasiabeverlyhills #maccosmetics #w7cosmetics #beautyblogger #bbloggersau #fashion  #missguided #style #fitness #spoonie #ehlersdanlossyndrome #chronicillness #butyoudontlooksick #maccosmetics insta topsy.oneThe past two days are an absolute blur. The pain is excruciating. I can barely talk, only getting up to pee once a day. Tegan came to sleep with me and made it all seem okay. I

Best tweets:

saam 21/03/2017 09:03
Y'a des gens qui ont un syndrome d'ehlers danlos de type 3 ici ? J'ai besoin de renseignements svp Hypermobile #sed #EhlersDanlosSyndrome

Une femme de 18 ans qui vit avec la maladie des contorsionnistes a dû abandonner son rêve de devenir ambulancière, car ses articulations sont toujours à risque de débarquer. L’étudiante Camille Grégoire-Dubé, de Québec, n’a pas délaissé le ...
SEDMedic 28/03/2017 11:54
#esante et #telemedecine Combattre la #desertification medicale #EhlersDanlosSyndrome https:// twitter.com/OMTStudio/stat us/846360997086531584   …
Nous sommes arrive a Paris pour la congres d' EDS #Paris #EhlersDanlosSyndrome #EDS #mylifewitheds
SEDMedic 28/03/2017 01:28
https:// youtu.be/_6yBXOc8BbE   @alanpocinki intervient sur #sommeil et #EhlersDanlosSyndrome @EDSWellnessSol apres changement #horaire du we
SEDMedic 28/03/2017 08:06
#esante et #objetsconnectes pour meilleure prise en charge #EhlersDanlosSyndrome https:// twitter.com/EricTopol/stat us/846793953898708992   …
sayurimei 30/03/2017 08:44
This is what happens at 2:42am and I had morphine.... My hunger strikes like a ninja waking me up to eat #EhlersDanlosSyndrome
http://pic.twitter.com/PXmAukDywu
This is what happens at 2:42am and I had morphine.... My hunger strikes like a ninja waking me up to eat #EhlersDanlosSyndrome <br>http://pic.twitter.com/PXmAukDywu
L o u i s e | 30/03/2017 05:03
Last night wearing @Missguided @MissguidedAUS #auckland #newzealand #nzfashion #stylist #missguided #spoonie #EhlersDanlosSyndrome
http://pic.twitter.com/lcHTwrDzze
Last night wearing @Missguided @MissguidedAUS #auckland #newzealand #nzfashion #stylist #missguided #spoonie #EhlersDanlosSyndrome <br>http://pic.twitter.com/lcHTwrDzze
Arianna Pflederer 29/03/2017 11:03
Considering ANOTHER #ServiceDog for #EhlersDanlosSyndrome! Watch Here : https:// youtu.be/8FF6_ePbs6M  
http://pic.twitter.com/EyT4I7KyZQ
Considering ANOTHER #ServiceDog for #EhlersDanlosSyndrome! Watch Here :  https:// youtu.be/8FF6_ePbs6M     <br>http://pic.twitter.com/EyT4I7KyZQ
Kara 29/03/2017 09:44
Please Follow My Other Account, To Show Support of Victims, with EhlersDanlosAidThank You @EhlersDanlosAid #EhlersDanlosSyndrome
http://pic.twitter.com/JLQvzAwSxj
Please Follow My Other Account, To Show Support of Victims, with EhlersDanlosAidThank You  @EhlersDanlosAid  #EhlersDanlosSyndrome <br>http://pic.twitter.com/JLQvzAwSxj
Ruth Patterson 29/03/2017 09:11
Sprained neck...classic #EhlersDanlosSyndrome night before speaking to @bbcouch at @bbcnewcastle on being a disabled musician @HolyMolyHQ x
Jenny Gallagher 29/03/2017 08:00
Seeking medical professionals in Notts/Derby who has knowledge on #EhlersDanlosSyndrome to help me raise awareness! DM me :D @ehlersdanlosuk
Michaela Simers 29/03/2017 02:47
Because its rarely taught, let alone talked about. #MakesItRare #EhlersDanlosSyndrome #EhlersDanlos #spoonie @H2OhTwist https:// twitter.com/H2OhTwist/stat us/847096514774269953   …
TheZebraTheory 29/03/2017 01:15
Got a headache from hell! My body never cooperates when I need to go out. #SpoonieProblems #EhlersDanlosSyndrome #housebound
http://pic.twitter.com/ohh06zjQU0
TheZebraTheory 29/03/2017 12:55
GP said only hospital can prescribe my meds as they are unlicensed 4 my condition. Only been on them 3 years #EhlersDanlosSyndrome #spoonie
http://pic.twitter.com/2wvSBid9ZV
Krista Brack 29/03/2017 11:43
Without science I wouldn't be able to walk. #whyIMarch #ScienceMarch #sciencenotsilence #EhlersDanlosSyndrome #tetheredcord
http://pic.twitter.com/y0vjuRlhYN
Without science I wouldn't be able to walk. #whyIMarch #ScienceMarch #sciencenotsilence #EhlersDanlosSyndrome #tetheredcord<br>http://pic.twitter.com/y0vjuRlhYN
Blueprint Genetics 28/03/2017 08:45
Raising awareness for #EhlersDanlosSyndrome #EDS. Keep up the great work Victoria #medicalzebra #geneticknowledge http://www. bbc.com/news/world-us- canada-39331416   …
TheZebraTheory 28/03/2017 07:31
No energy but plenty of pain #EhlersDanlosSyndrome #chronicpain #SpoonieProblems #illness #health
http://pic.twitter.com/vhFhU6JYr5
TheZebraTheory 28/03/2017 07:14
April is #IBSAwarenessMonth please RT to raise awareness. 1 in 5 people suffer from this invisible condition. #EhlersDanlosSyndrome #gastro
Kelsey Hardin 28/03/2017 11:59
This is awesome! :) BBC News - The US beauty queen making her invisible illness visible #EDS #ehlersdanlossyndrome http://www. bbc.com/news/world-us- canada-39331416   …
At the pain clinic now waiting for my 6 month review #EhlersDanlos #ehlersdanlossyndrome #hEDS #hypermobility @ehlersdanlosuk #spoonie
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