raredisease


Best tweets:

Yoni Maisel - CVID 25/06/2017 02:49
Turning Gamers into #CitizenScience Cure-Hunters https:// scicasts.com/channels/big-d ata/2007-scientific-computing/12667-using-mobile-computer-game-to-unlock-molecular-secrets/   … #ITRTG #RareDisease #BigData #science #tech #biotech #gaming
http://pic.twitter.com/cGe9xN2STn
Turning Gamers into #CitizenScience Cure-Hunters  https:// scicasts.com/channels/big-d ata/2007-scientific-computing/12667-using-mobile-computer-game-to-unlock-molecular-secrets/   …  #ITRTG #RareDisease #BigData #science #tech #biotech #gaming <br>http://pic.twitter.com/cGe9xN2STn

A 17-year-old girl from Bowling Green, Ohio, is speaking out about her experience with ovarian cancer to let women know that the disease can happen to young people, too. Caly Bevier tells People that she first developed symptoms in 2015 when her stomach ...
Rare Disease UK 25/06/2017 09:00
Shanali Perera uses art to cope with her #raredisease http://www. raredisease.org.uk/news-events/ne ws/why-i-use-art-to-cope-with-my-rare-disease/   …
http://pic.twitter.com/Xc6uvMnU7p
Shanali Perera uses art to cope with her #raredisease  http://www. raredisease.org.uk/news-events/ne ws/why-i-use-art-to-cope-with-my-rare-disease/   … <br>http://pic.twitter.com/Xc6uvMnU7p
CHICAGO — Jen Rubino knows how it feels to be sick and in the hospital at a young age. The 22-year-old was diagnosed with a rare childhood bone disease at 10 years old. She has spent years in and out of hospitals and has had more than 20 surgeries.
NORD 25/06/2017 12:14
America’s most vulnerable citizens [#raredisease patients] rely on good coverage. #ProtectPatientsNow VOTE NO #BCRA: bit.ly/2tBYKXL  
http://pic.twitter.com/ugCrrI9139
America’s most vulnerable citizens [#raredisease patients] rely on good coverage. #ProtectPatientsNow VOTE NO #BCRA:  http:// bit.ly/2tBYKXL     <br>http://pic.twitter.com/ugCrrI9139
Raising money to help find a cure for a loved one’s rare disease can trump most other financial priorities. That’s precisely the case for Kristen and Shawn Connor, of Marlton, N.J., whose five-year-old daughter Brynn was diagnosed with Rett Syndrome, a ...
Yoni Maisel - CVID 24/06/2017 06:37
#RareDisease - Silicon Valley Rallies to Save One of Theirs http://www. xconomy.com/san-francisco/ 2017/06/23/startup-founders-quest-for-cure-leads-to-genomics-hackathon-at-google/#   … #ITRTG #genomics #AI #science #tech #SNRTG #biotech
http://pic.twitter.com/I9SKbficvm
#RareDisease - Silicon Valley Rallies to Save One of Theirs  http://www. xconomy.com/san-francisco/ 2017/06/23/startup-founders-quest-for-cure-leads-to-genomics-hackathon-at-google/#   …  #ITRTG #genomics #AI #science #tech #SNRTG #biotech<br>http://pic.twitter.com/I9SKbficvm
The treatment is designed to prevent swelling attacks in patients with HAE The Food and Drug Administration granted marketing approval to Haegarda, a medicine developed by CSL Behring of King of Prussia to prevent swelling attacks in adolescent and adult ...
Larissa Kerecuk 24/06/2017 04:35
Exactly 4 weeks til first #RareDisease @RoaldDahlFund @Bham_Childrens #SummerParty: looking forward @Zoo2U_UK @PlatnumPancakes & much more!
http://pic.twitter.com/XXpXxuFvHv
Exactly 4 weeks til first #RareDisease @RoaldDahlFund @Bham_Childrens #SummerParty: looking forward @Zoo2U_UK @PlatnumPancakes & much more!<br>http://pic.twitter.com/XXpXxuFvHv
Amid the din of physical therapists calling out words of encouragement to children walking, slowly riding bikes or bouncing balls, Liam Fischer looks oddly still. He wears a visor on his head with a laser pointer peeking over the edge, its red light moving ...
Alessandra Lietti 23/06/2017 07:28
My ordinary life with a #raredisease #gitelmansyndrome
http://pic.twitter.com/uI0YMFdjQE
My ordinary life with a #raredisease #gitelmansyndrome<br>http://pic.twitter.com/uI0YMFdjQE
@westmidsgmc 23/06/2017 07:13
Delighted to announce that @WalsallHcareNHS & @nhsswft are now open to recruit #raredisease participants to #genomes100k - welcome aboard!
http://pic.twitter.com/NwrrgXv5bH
Delighted to announce that @WalsallHcareNHS & @nhsswft are now open to recruit #raredisease participants to #genomes100k - welcome aboard!<br>http://pic.twitter.com/NwrrgXv5bH
Yoni Maisel - CVID 23/06/2017 04:06
A Rare Disorder Will Completely Paralyze Her. She Has a Plan... http://www. latimes.com/projects/la-me -kam-redlawsk/   … #inspiration #RareDisease #drawing #art #SNRTG
http://pic.twitter.com/We1j27gy1d
A Rare Disorder Will Completely Paralyze Her. She Has a Plan...  http://www. latimes.com/projects/la-me -kam-redlawsk/   …  #inspiration #RareDisease #drawing #art #SNRTG<br>http://pic.twitter.com/We1j27gy1d
NORD 22/06/2017 09:33
RETWEET. The #raredisease community MUST ACT NOW & encourage Congress to Vote No on #BCRA & #ProtectPatientsNow
Horizon Pharma plc 22/06/2017 06:49
#RAREis being superheroes. Text the word “RARE” to 565-12 and we’ll donate $1 to @GlobalGenes (up to $10,000). #RareDisease #Superhero
http://pic.twitter.com/qGLNsvOF73
Yoni Maisel - CVID 22/06/2017 04:19
Neil deGrasse Tyson: Interesting Views on #CRISPR | http://www. nbcnews.com/megyn-kelly/vi deo/neil-degrasse-tyson-on-crispr-gene-editing-965005891888   … #genomics #ITRTG #biotech #science #tech #RareDisease #SNRTG
http://pic.twitter.com/FM6Az53zWI
Neil deGrasse Tyson: Interesting Views on #CRISPR |  http://www. nbcnews.com/megyn-kelly/vi deo/neil-degrasse-tyson-on-crispr-gene-editing-965005891888   …  #genomics #ITRTG #biotech #science  #tech #RareDisease #SNRTG<br>http://pic.twitter.com/FM6Az53zWI
Yoni Maisel - CVID 21/06/2017 06:56
Citizen Science Rocks the #Research World #RareDisease & Beyond blogs.discovermagazine.com/citizen-scienc e-salon/2017/06/20/science-heroes-at-work/#.WUq-NbZLfcs   … #BigData #science #tech #SNRTG #brain #SNRTG #gaming
http://pic.twitter.com/hqUlO4xeFG
Citizen Science Rocks the #Research World #RareDisease & Beyond  http:// blogs.discovermagazine.com/citizen-scienc e-salon/2017/06/20/science-heroes-at-work/#.WUq-NbZLfcs   …  #BigData #science #tech #SNRTG #brain #SNRTG #gaming<br>http://pic.twitter.com/hqUlO4xeFG
Horizon Pharma plc 21/06/2017 06:05
#RAREis the future. Honorable Jim Greenwood, CEO & President of @IAmBiotech, helping raise #raredisease awareness at #BIO2017. @GlobalGenes
http://pic.twitter.com/UgfyxlQrtP
#RAREis the future. Honorable Jim Greenwood, CEO & President of @IAmBiotech, helping raise #raredisease awareness at #BIO2017. @GlobalGenes<br>http://pic.twitter.com/UgfyxlQrtP
Yoni Maisel - CVID 21/06/2017 02:59
Medicalizing #Mathematics in the Age of Very Big Data https:// theconversation.com/the-maths-of-l ife-and-death-our-secret-weapon-in-the-fight-against-disease-77416?utm_medium=email&utm_campaign=Latest%20from%20The%20Conversation%20for%20June%2016%202017%20-%2076345993&utm_content=Latest%20from%20The%20Conversation%20for%20June%2016%202017%20-%2076345993+CID_eaa92c06271a954e7803ec8e845e38c5&utm_source=campaign_monitor_uk&utm_term=The%20maths%20of%20life%20and%20death%20our%20secret%20weapon%20in%20the%20fight%20against%20disease   … #RareDisease #math #Biology #science #tech #SNRTG #BigData
http://pic.twitter.com/o5xiSiQLtz
Medicalizing #Mathematics in the Age of Very Big Data  https:// theconversation.com/the-maths-of-l ife-and-death-our-secret-weapon-in-the-fight-against-disease-77416?utm_medium=email&utm_campaign=Latest%20from%20The%20Conversation%20for%20June%2016%202017%20-%2076345993&utm_content=Latest%20from%20The%20Conversation%20for%20June%2016%202017%20-%2076345993+CID_eaa92c06271a954e7803ec8e845e38c5&utm_source=campaign_monitor_uk&utm_term=The%20maths%20of%20life%20and%20death%20our%20secret%20weapon%20in%20the%20fight%20against%20disease   …  #RareDisease #math #Biology #science #tech #SNRTG #BigData<br>http://pic.twitter.com/o5xiSiQLtz
Rare Disease UK 21/06/2017 01:55
Collectively, rare diseases are not rare: 1 in 17 people will be affected by a #raredisease at some point in their life.
http://pic.twitter.com/vhsJrpMS4j
Collectively, rare diseases are not rare: 1 in 17 people will be affected by a #raredisease at some point in their life. <br>http://pic.twitter.com/vhsJrpMS4j
Valentina Bottarelli 21/06/2017 11:08
Getting started at @FriendsofEurope event on #RareDisease #FoEhealth @eurordis
http://pic.twitter.com/VcbCy74kmQ
Getting started at @FriendsofEurope event on #RareDisease #FoEhealth  @eurordis<br>http://pic.twitter.com/VcbCy74kmQ
Horizon Pharma plc 20/06/2017 06:23
#RAREis finding a breakthrough. Text RARE to 56512 to trigger a donation to @GlobalGenes. @BIOConvention #BIO2017 #raredisease
http://pic.twitter.com/MQ1yILHA0V
#RAREis finding a breakthrough. Text RARE to 56512 to trigger a donation to @GlobalGenes. @BIOConvention #BIO2017 #raredisease <br>http://pic.twitter.com/MQ1yILHA0V
NORD 20/06/2017 02:06
WE NEED YOU during #NORD Days of Action to Protect Your Coverage! Visit rareaction.org/daysofaction   ! TAKE ACTION NOW for #raredisease patients!
http://pic.twitter.com/imQoCvQ3Gn
WE NEED YOU during #NORD Days of Action to Protect Your Coverage! Visit  http:// rareaction.org/daysofaction      ! TAKE ACTION NOW for #raredisease patients! <br>http://pic.twitter.com/imQoCvQ3Gn
Yoni Maisel - CVID 20/06/2017 01:30
Man & His Best Friend Join Forces for Cures https://www. forbes.com/sites/bernardm unos/2017/06/19/want-to-speed-biomedical-research-do-it-in-dog-years/#540c169d665c   … #dogs #RareDisease #ChildhoodCancer #biotech #science #genomics #BigData
http://pic.twitter.com/Cjj3Bf3jBx
Man & His Best Friend Join Forces for Cures  https://www. forbes.com/sites/bernardm unos/2017/06/19/want-to-speed-biomedical-research-do-it-in-dog-years/#540c169d665c   …  #dogs #RareDisease #ChildhoodCancer #biotech #science #genomics #BigData<br>http://pic.twitter.com/Cjj3Bf3jBx
Yoni Maisel - CVID 20/06/2017 07:50
New Hope for a #RareDisease; Its Most Famous Patient Remembered http://www. genengnews.com/gen-news-highl ights/crispr-reverses-huntingtons-disease-in-mice/81254532   … #tech #biotech #science #SNRTG #ITRTG #genomics
http://pic.twitter.com/XTue5i5ABe
New Hope for a #RareDisease; Its Most Famous Patient Remembered  http://www. genengnews.com/gen-news-highl ights/crispr-reverses-huntingtons-disease-in-mice/81254532   …  #tech #biotech #science #SNRTG #ITRTG #genomics<br>http://pic.twitter.com/XTue5i5ABe
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